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3:00
YouTube
Newstalk
Friedreich's ataxia | Newstalk #ireland #news #health
'If it was your child, what would you do?' Craig Coady lost one of his sons to Friedreich’s ataxia last year. He is now begging the Government to help fund medication that could help his other son, who also suffers from the disease. Craig tells his story, on The Claire Byrne Show ...
1.7K views
3 weeks ago
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Madilynn has a rare genetic disability called Spinocerebellar Ataxia Type 5. We never knew what our life would look like, but damn it’s beautiful. For Rare Disease Week we are sharing a little more about our life. SCA5 affects her balance, coordination, and directly affects the growth of her cerebellum. Basically, it makes her brain speak slower to her body than typical people. But as you can see she’s a kid first. She laughs, loves playgrounds and being around other kids, and wants to be the be
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4 months ago
TikTok
mightymadilynn
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