THE HSE has approved the reimbursement of Skyclarys for patients with Friedreich’s Ataxia. The miracle drug is already ...

The HSE Senior Leadership Team will meet to discuss the drug Skyclarys, which is for people with the rare neurological ...

THE HSE has approved the reimbursement for a treatment for a rare disorder that will be available for patients across the ...

Campaigners advocating for those affected by Friedreich's Ataxia have again appealed to the HSE to approve the Skyclarys ...

The mother of two teenagers with Friedreich's Ataxia has said it is “absolutely brilliant news” that the HSE has decided to ...

Advocates say the drug Skyclarys can slow the devastating disease and 'improve things' such as the ability to communicate ...

The HSE has approved funding for Skyclarys after Biogen made a substantially improved financial offer for the treatment ...

Graviton BioScience Corporation, a privately held, clinical-stage biotechnology company developing a diverse pipeline of therapeutics, including selective ROCK2 inhibitors for metabolic, inflammatory, ...

Craig Coady’s oldest son, Rory, died with Friedreich's Ataxia last year and his second son, Paudie, has also been diagnosed ...

What’s important to note on Skyclarys, however, is the statement from the HSE that had the “substantially improved financial ...

Patients and families are calling on the HSE to fund Skyclarys, a treatment they say could help slow progression of the rare ...

MINNEAPOLIS, Sept. 25, 2025 /PRNewswire/ -- The National Ataxia Foundation (NAF) today announced the launch of The Science Guy: Back in the Lab for FA, a new educational campaign to raise awareness ...